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PWS-Clinical Investigation Collaborative (PWS-CLIC) STUDYTRAX Clinical Database
PWS-CLIC database
What is the goal of the study?
The primary objective of the study is to improve the quality of clinical research and medical care for people with Prader-Willi syndrome (PWS) across the lifespan through collaborative investigation and research to support evidence-based care. This objective will be accomplished by establishing a central repository for the consistent collection of de-identified data from participants who receive medical care at PWS-Clinical Investigation Collaborative (PWS-CLIC) member sites. This study will expand the shared evidence base and support learning from every patient.
Who can participate in the study?
Everyone