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Inspiring New Science in Guiding Healthcare in Turner Syndrome (INSIGHTS) Registry

INSIGHTS

Condition(s): Other

What is the goal of the study?

The overarching aim of this study is to establish a national, multicenter, prospective, longitudinal clinical data registry to improve clinical outcomes in individuals with Turner Syndrome (TS). This project will build a collaborative network of centers with a sustainable, unified, and centralized data repository comprised of a large nationally representative, diverse cohort of patients with TS.

Who can participate in the study?

Everyone

Study Team:

PI (Study Doctor): Patricia Fechner
Study Team Member: ECR Endocrine Research, endocrineresearch@seattlechildrens.org