Search Results

CONNECT1905: Phase 2 Study of Systemic IL-6 Receptor Antagonist ACTEMRA (tocilizumab) for the treatment of Pediatric Adamantinomatous Craniopharyngioma-STUDY00004270

Rationale: Adamantinomatous Craniopharyngioma (ACP) is a highly debilitating pediatric brain tumor that lacks medical anti-tumor therapies....

ARAR2221: A Phase 2 Study Using Chemoimmunotherapy with Gemcitabine, Cisplatin and Nivolumab in Newly Diagnosed Nasopharyngeal Carcinoma (NPC)-STUDY00004959

Nasopharyngeal carcinoma (NPC) is a tumor of epidermoid origin with unique histologic, epidemiologic and biological characteristics. In its...

CONNECT2110: A Phase II Trial of ACT001 in Children and Adolescents with Diffuse Intrinsic Pontine Gliomas and H3K27-altered High Grade Gliomas-STUDY00005565

This is a Phase II open-label study to investigate the safety and efficacy of ACT001 in patients with DIPG and H3K27-altered HGG. Patients will...

CONNECT1903: A Pilot and Surgical Study of Larotrectinib for Treatment of Children with Newly-Diagnosed High-Grade Glioma with NTRK Fusion-STUDY00002344

In this pilot study, we will assess the disease control rate [Continued Complete Response (CCR), Complete Response (CR), Partial Response (PR) and...

Developing a Patient-Reported Outcome Measure for Youth Seeking Gender-Affirming Health Care (GENDER-Q Youth): A Field-test Study-STUDY00005079

The objective of this phase 2 field-test is to recruit a heterogeneous sample of youth who identify as transgender or gender diverse and have them...

Defining the Genetic Etiology of Suppurative Lung Disease in Children and Adults (GDMCC 5906)-STUDY00002760

We have established a Consortium of 8 geographically-dispersed clinical research sites in North America that are designed to study rare diseases...

Development and Validation of Applying Thermal Imaging as an Adjunct Tool to Augment Physician?s Assessment in Telehealth Setting-STUDY00003813

This is an observational study that will compare the accuracy of assessments performed by telemedicine to assessments performed in person for...

Cranial Base Registry-STUDY00001830

The objective of the study is to establish a prospective registry of skull/cranial base patients in order to improve management, particularly...

Core A: The Hepato-Renal Fibrocystic Diseases Translational Resource-STUDY00001925

To learn more about this study, please email the study team member listed below.

Congenital Cytomegalovirus, Hearing Loss, and Autism Retrospective Study-STUDY00003884

Researchers at Seattle Children’s Hospital want to learn more about the connection between Autism Spectrum Disorder and congenital CMV and...