Patient and Family Education

We want you to have all the information you and your child need to understand your child’s condition and to participate in treatment. This page provides links to resources that we hope will be helpful.

Resources at Seattle Children’s

• What to expect at Audiology
• How to prepare for your visit 
• Transportation and lodging
• Hospital services
  
• Paying for care
• Social Work
• Patient and Family Resources in the Childhood Communication Center

Condition-Specific Resources

Hearing loss

• Audiology Resources for Patients Transitioning to Adult Care or Moving (PDF)
• Auditory Neuropathy Spectrum Disorder (ANSD) (PDF) (Spanish)
• Caregiver Grief: When Your Child Is Diagnosed with a Hearing Loss (PDF) (Spanish)
• Conductive Hearing Loss (PDF) (Spanish)
• Education Plans for Children With Hearing Loss (PDF) Spanish
• Hearing Loss Clinic (PDF)
• Mild Bilateral Hearing Loss (PDF) (Spanish)
• Supporting Your Child with Hearing Loss: helping them identify their feelings (PDF) (Spanish)
• Unilateral Hearing Loss:  Guidelines for Children (PDF) Spanish
• For Kids: What's Hearing Loss?  
• For Teens: Hearing Impairment 
• Hearing Loss Resource Guide (Washington State Department of Health) (PDF) 
• Mental Health Services for Deaf and Hard-of-Hearing Children and Their Families (PDF) 
• Safety Tips for Children with Hearing Loss (PDF) (Spanish)

Test Resources

• After Your Baby’s Hearing Screening -  Further Evaluation (PDF) (Spanish)
• BAER and EOAE testing (PDF) (Spanish)
• BAER and EOAE Hearing Tests Under Anesthesia (PDF) (Spanish) 
• Hearing Screening: How to Prepare Your Baby (PDF) (Spanish)

Treatment-Specific Resources

• Aural Habilitation Therapy (PDF)
• Device Options for Hearing Loss (PDF) (Spanish) 
• Earmold Care and Cleaning (PDF) (Spanish)
• Hearing Aid Listening Check, Storage and Accessories (PDF) (Spanish)
• Hearing Aid Safety Tips and Checking for Feedback (PDF) (Spanish)
• Hearing Aid Wearing Schedule and Increasing Use (PDF) (Spanish)
• Hearing Assistive Technology (PDF) (Spanish)
• Hearing Device Retention Options (PDF) (Spanish)
• Hearing Device Warranty and Follow Up Schedule (PDF) (Spanish)
• How to Glue Earmold Tubing (PDF) (Spanish)
• How to Re-Tube Earmolds at Home (PDF) (Russian) (Spanish)
• How to Trim Earmold Tubing (PDF) (Russian) (Spanish)
• Osseointegrated Bone Conduction Sound Processor (PDF) (Spanish)
• Remote-Microphone Hearing Assistance Technology (RM-HAT) (PDF)
• Road Map to Your Child’s Hearing Device Fitting and Maintenance Schedule  (PDF) (Russian) (Spanish)

Support

• Sibshops
• List of support groups at Seattle Children’s
• Deaf and Hard of Hearing Support Group for Middle and High School Students Who Communicate With Sign Language (PDF) (Spanish)
• Deaf and Hard of Hearing Support Group for Youth Who Use Spoken English (PDF)
• Parent to Parent (The Arc of Washington State)
• Guide by Your Side

Education Services for Deaf and Hard-of-Hearing in Washington State

• Family Conversations
• Hearing Speech and Deafness Center
• Listen and Talk

External Links

• AAC Institute (augmentative and alternative communication) 
• American Academy of Audiology
• American Academy of Otolaryngology - Head and Neck Surgery    
• American Speech-Language-Hearing Association  
• Alexander Graham Bell Association for the Deaf and Hard of Hearing  
• Apraxia-KIDS  
• Babyhearing.org   
• Center for Deaf and Hard of Hearing Youth (Washington Center for Deaf and Hard of Hearing Youth)
• Early Hearing-Loss Detection, Diagnosis and Intervention Program (Washington State Department of Health)   
• Early Support for Infants and Toddlers (Washington State Department of Children, Youth and Families)  
• Hands and Voices  
• Washington State Hands and Voices 
• Hearing Loss Resource Guide (Washington State DOH) (PDF)
• International Society for Augmentative and Alternative Communication  
• National Association of the Deaf  
• National Center for Hearing Assessment and Management 
• National Cued Speech Association  
• Office of the Deaf and Hard of Hearing (Washington State Department of Social and Health Services)   
• Vaccines and Immunizations (CDC)   
• Centers for Disease Control and Prevention  
• Washington Sensory Disabilities Services (WSDS)  

External Videos

• Navigating Deafness on the Way to a Rhodes Scholarship: Rachel Kolb at TEDxStanford